Amplify Blog - The need for better Family Support Services for sibling carers
by QFCC Youth Advocate Caroline
When I first took on the role of a sibling carer, I was met with a whirlwind of emotions—fear, pride, and an overwhelming sense of duty. No amount of preparation can truly equip someone for the mental burden of managing constant appointments, making difficult decisions, and navigating the intricate details of another person's care. Each day felt like a race against time, especially as the system often seemed to present more obstacles than assistance.
As my family reached a crisis point, the “possibility” I had long warned about became an undeniable reality, and responsibilities escalated almost overnight. While I understood that, as the adult, I was expected to step up, it felt as though no one recognised the toll this would take on me. I was expected to push aside my own emotions, prioritise the needs of others, and operate on autopilot. Yet, beneath the surface, the weight of these responsibilities was overwhelming, leaving little room for my own well-being.
Reflecting on this experience, I realise how transformative appropriate support for families could have been for my own safety and that of my loved ones. Navigating this journey alone was incredibly challenging, and the absence of clear guidance only compounded my struggles. What I truly needed was practical support: a dedicated contact who understood the unique challenges faced by sibling carers, expedited access to services, and an acknowledgment that I was equally lost in this situation.
The lack of emotional support added further strain to an already heavy load. While I devoted my energy to my sibling’s needs, I found myself gradually losing parts of my own life and independence. If the system had recognised sibling carers as a distinct group with specific challenges, I believe I would have felt less isolated and more equipped to manage the demands placed upon me. Access to practical resources, emotional support, and validation could have profoundly changed my experience.
Sibling carers play an essential role in the lives of their siblings, yet we often find ourselves navigating this journey alone, without the support we so desperately need. We should not have to choose between caring for our siblings and pursuing our own lives and aspirations. It is time for a system that acknowledges the vital contributions of sibling carers, providing the necessary support to ensure that none of us must bear this burden alone.